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| A number of organizations exist that might help you find information or support from other people who are living with your condition. |
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American Cancer Society (ACS)
1-800-ACS-2345
1-866-228- 4327 TTY for hearing-impaired people.
http://www.cancer.org
This is the major cancer organization in the United States. It is available 24 hours a day, seven days a week.
NOTE: Online material is available in English and Spanish. |
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American Sickle Cell Anemia Association (ASCAA)
www.ascaa.org
ASCAA is an organization that provides quality and comprehensive services through diagnostic testing, evaluation, counseling and supportive services to individuals and families at risk for sickle cell disease. |
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Anemia Institute
416-969-7431
www.anemiainstitute.org
This nonprofit organization is dedicated to generating and sharing knowledge about anemia as a serious condition - particularly among patients and health care professionals dealing with disease and/or treatment-related risk factors for anemia. |
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MDS International Foundation (AA&MDSIF)
www.aamds.org
AA&MDSIF is an independent nonprofit organization whose mission is to support patients, families and caregivers coping with Aplastic Anemia (AA), Myelodysplastic Syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and related bone-marrow failure diseases. |
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Ask About Iron Overload
http://www.askaboutiron.com
Find information about iron overload from Novartis and get FREE access to educational materials about iron overload, how it can affect you, screening and diagnosis, tracking your iron levels, and the importance of seeking treatment. |
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Centers for Disease Control and Prevention (CDC)
www.cdc.gov
The CDC is the nation's premiere health promotion, prevention, and preparedness agency, and a global leader in public health. It remains at the forefront of public health efforts to prevent and control infectious and chronic diseases, injuries, workplace hazards, disabilities and environmental health threats. |
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Cooley's Anemia Foundation
www.thalassemia.org
The foundation is dedicated to serving people afflicted with various forms of thalassemia, most notably the major form of this genetic blood disease, Cooley's anemia/thalassemia major. |
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Diamond Blackfan Anemia Registry of North America (DBAR)
www.dbar.org
DBAR of North America was established in 1993 to collect accurate clinical and demographic data on DBA patients and their families. Headquartered at Schneider Children's Hospital in New York, the DBAR is a research organization dedicated to acquiring, analyzing and disseminating information on Diamond Blackfan anemia to affected individuals, their families and medical professionals. The DBAR has collected information on more than 400 patients in its database. |
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Iron Disorders Institute (IDI)
www.irondisorders.org
IDI exists so that people with iron disorders receive an early and accurate diagnosis and appropriate treatment, and are equipped to live in good health. |
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Iron Overload Diseases Association
www.ironoverload.org
The association's mission is to lead the search for the millions of people who have undiagnosed iron overload, promote adequate treatment, and prevent the severe health problems and avoidable deaths that result from the neglect of iron overload. |
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Leukemia & Lymphoma Society (LLS)
www.leukemia-lymphoma.org
LLS is the world's largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The mission of LLS is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families. Since its founding in 1949, LLS has invested more than 600 million dollars for research specifically targeting blood cancers. |
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Myelodysplastic Syndromes Foundation (MDS)
www.mds-foundation.org
MDS is a multidisciplinary, international organization devoted to the prevention, treatment and study of myelodysplastic syndromes. The organization is based upon the premise that international cooperation will accelerate the process leading to the control and cure of these diseases. |
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National Institutes of Health
1-800-422-6237
http://www.health.nih.gov
The institutes are the United States' government's medical research organizations.
NOTE:Online material is available in English and Spanish. There are also links to other government-funded sites, including the registry of clinical trials. |
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Sickle Cell Disease Society of America (SCDAA)
www.sicklecelldisease.org
SCDAA's mission is to promote finding a universal cure for sickle cell disease while improving the quality of life of individuals and families. |
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Thalassemia Support Foundation
www.helpthals.org
This nonprofit organization was founded by patients, parents and friends affected by thalassemia. Its primary goal is to help improve the quality of life for all patients with this disease. | | |
